RYAN’S STORY

In August 2009, the lives of our family were devastated when our 14 year old son Ryan was diagnosed with Glioblastoma Multiforme Brain Tumours, five in total with the main tumour being on his brain stem. We struggled to obtain and were also unaware of some useful and essential aids that would have enhanced Ryan’s care had we known about them at the time. Therefore, we set up this charity to make sure people could get the things that they need during the difficult times.

Prior to his diagnosis Ryan was an extremely fit and healthy teenager, with his life in front of him. Ryan was a 2nd Dan Black belt in Wado Ryu Karate having studied this for 10 years, he played for many local football teams. He was a typical, very popular teenager in the area that we live. Ryan went from being fit and healthy, to needing 24/7 care, not being able to walk, talk or eat properly and his body destroyed by the brain tumours.

We as Ryan’s parents, thought Ryan had a lifetime of experiences ahead of him, but sadly Ryan passed away on the 25th May 2010 age 15 after a 10 month battle against cancer, at home in our arms peacefully in his sleep.

During Ryan’s illness we wanted to care for him at home for him to be with family and friends, rather than be in a hospital environment. We struggled to obtain and were also unaware of some useful and essential aids that would have enhanced Ryan’s care had we known about them at the time, despite working closely with the local health and social care services.

With hindsight we now know our experience and the care given to Ryan could have been better, this is why this was set up.

We as a family were determined to keep Ryan positive to make his life as happy as possible, visiting places like London to see the attractions. Ryan also had the opportunity to meet the team at Derby County and to go to as many matches as his health would allow. Many other events have left us with some happy memories of Ryan during his illness.

Help us ease the strain for children and teenagers suffering with cancer.